Dear Bianca's Kids
Our sweet Layton has an extremely rare syndrome called cri du chat. Cri-du-chat syndrome effects just 1 in 50,000 babies a year. This is caused by a deletion on the short arm of chromosome 5. Layton’s deletion is large. Layton has developmental delay and is nonverbal.
Layton will never live independently. He has recently had surgery and it didn't go so good. Layton’s airways are extremely narrow and a tracheotomy maybe on the cards.
I was hoping you may be able to help cheer sweet Layton up by helping us get him some sort of sensory tunnel/infinity light. Layton loves lights and I just know he would love it so much. We are one day hoping to set Layton a sensory room at home at the moment that can’t happen as I don’t work. Layton needs my full attention and Layton’s daddy has been finished up in work due to him having prolapsed disks in his back and was not fit for the job anymore. This would be an amazing gift and the start to Layton sensory room.
We are from the UK.
Love to you all ♡♡
Amie, we are so excited to kick off the family project to give Layton a beautiful sensory room by providing him with five brand new sensory lights and toys. We hope you love them, Layton. We are rooting for you all the way from the USA!