Dear Bianca's Kids
Our sweet Layton has an extremely rare syndrome called cri du chat. Cri-du-chat syndrome effects just 1 in 50,000 babies a year. This is caused by a deletion on the short arm of chromosome 5. Layton’s deletion is large. Layton has developmental delay and is nonverbal.
Layton will never live independently. He has recently had surgery and it didn't go so good. Layton’s airways are extremely narrow and a tracheotomy maybe on the cards.
I was hoping you may be able to help cheer sweet Layton up by helping us get him some sort of sensory tunnel/infinity light. Layton loves lights and I just know he would love it so much. We are one day hoping to set Layton a sensory room at home at the moment that can’t happen as I don’t work. Layton needs my full attention and Layton’s daddy has been finished up in work due to him having prolapsed disks in his back and was not fit for the job anymore. This would be an amazing gift and the start to Layton sensory room.
We are from the UK.
Love to you all ♡♡
Amie, we are so excited to kick off the family project to give Layton a beautiful sensory room by providing him with five brand new sensory lights and toys. We hope you love them, Layton. We are rooting for you all the way from the USA!
IN LOVING MEMORY OF VINCENZO "CENZO" LIBIO
Dear Bianca's Kids:
On September 6, a drunk driver struck and killed three young adults in Tallahassee, Florida. Among the deceased were Vincenzo Libio, a young man who had graduated from Florida State University only 3 weeks prior, Morgan Carr, Vincenzo's girlfriend of nearly 8 years, and Kevin Boos, Vincenzo's childhood friend since preschool. Cenzo was a remarkable man who dedicated most of his time to school and his fraternity, Phi Sigma Kappa. Between work, school, his fraternity, and internships, Cenzo even found the time to raise money for muscular dystrophy, a horrible disease that affected a close friend of his. Cenzo was an absolute joy to be around due to his constant jokes, big heart, and never ending smiles.
Anyone who knew him can agree that his biggest passion by far was the Dallas Cowboys. The aftermath of this horrific accident has left the families of those involved completely distraught. Among those who have been impacted are Cenzo's younger brothers, Stefano and Joseph. The loss of such young lives is a tragedy, and the fact that two brothers will never be able to spend another day with their role model makes it even more heart breaking. On November 22, the Dallas Cowboys will be playing the Miami Dolphins in Florida. It would be absolutely amazing if Stefano and Joseph could attend this game. Nothing can ever compensate for their loss, but a gesture such as this would show the family that their son will never be forgotten.
Thank you for your time!
Dear Alex, some wishes are more difficult than others. This is one of the most difficult ones. It is our honor to grant this wish for you. Two tickets for the Dolphins v. Cowboys game on Nov 22nd in Miami are on their way to you for Stefano & Joseph. What a beautiful way for them to bond and honor their lost brother/mentor. Our thoughts and prayers remain with the families of all three victims of this tragedy.
Dear Bianca's Kids:
My son Hayden was born with a second chromosome deletion which caused lots of health issues, such as epilepsy, kidney disease, adrenal insufficiency, cleft lip and palate. Hayden is getting a major surgery on his lip next week and due to his medical problems he will need to stay in the hospital longer than normal... We would appreciate if anyone could help us out with restaurant or food gift cards, gas cards, toys, blankets, or books while Hayden is in the hospital next week. His surgery is scheduled 09/18 and he will need to stay at least 4 nights. Please also keep us in your thoughts and prayers during this stressful time for our family.
Sarah, your wish is granted! We have expedited a $200 check to help
You with food & gas while Hayden has surgery. A little something for your beautiful boy to hold during his recovery is coming as well. Please keep us updated on Hayden's progress
Dear Bianca's Kids,
My son Dylan has Wolf Hirschhorn syndrome. He is mentally and physically like a 3 month old. Dylan loves Olaf from the movie frozen.He has a small stuffed Olaf that he loves to hold onto the hand, and cuddles all night. Anytime he sees Olaf he smiles so big♡He would love anything Olaf :)
Dear Melissa, your wish is GRANTED! Be on the lookout for a package chock full of Olaf items for Dylan from Bianca's Kids.
Dear Bianca's Kids
Luke is 13 years old. He was Diagnosed in 2003 with two diseases. He has Neurofibromatosis Type 1. It is a condition that causes random tumors to grow throughout the body. The tumors can be cancerous. He had a brain biopsy in October of 2003 that confirmed a brain tumor separate from the NF1. It is called Gliomatosis Cerebri. It is a highly invasive, inoperable type of tumor that usually takes the person's life within two months to two years of diagnosis. It will never go away, and the prediction is that it will eventually take Luke's life. For now, his parents count their blessings daily. Luke battles other issues that cause a major artery to his brain to narrow, putting him at risk for stroke. This beautiful little boy has been stripped of so much.
One thing Luke used to enjoy was bike riding with his parents. Given his circumstances & the fact that a traditional bike will not work anymore, he needs a special item. My wish for Luke is a 2015 Igo Venture by Wehoo. This gift for Luke would provide him the opportunity to enjoy bike riding again and to feel the wind in his beautiful face again.
Kenny, we are thrilled to grant this wish. Luke's 2015 Venture is on its way!
Dianna Fowler sent us this wish for her niece Kaylee.
Hi Bianca's Kids,
I live in Newport News Virginia. I wish with all my heart is that Kaylee and her a family to get any help possible. Let me tell you a little about Kaylee and her parents Brandon and Kathy Fowler. She is a 7 year old little girl that lives in Newcastle Texas. She has epilepsy and cerebral palsy. She is such a fun loving girl. Today Monday August 31st 2015 Kaylee is having brain surgery in Austin Texas@ 10:30 am. Kaylee is having a Left Functional Hemispherectomy, complete disconnect of the left side of her brain. It won't cure her Epilepsy, but it will help control them better and help with the with meds, because she has intractable Epilepsy, ( uncontrolled by Medications) and nasty side effects. Kaylee has spent today, with uncontrolled actions, crying out of control, Auras, complex Parcial seizures, clusters. Kathy is not able to work and spends all of her time caring for her daughter Kaylee and Lanye. Kathy takes her to her appointments in oklahoma city, Austin Texas and closer areas almost daily. Brandon works at Tower in Olney Texas and provides the best he can. While he is in Austin Texas for his daughters surgery he will not be paid any leave time at work due to not being there over a year. He is a hard worker and dedicated father and husband. He has served in the United States Air Force. This family would be so grateful for any help with gas, food anything possible. Money is really tight since Brandon will not be returning to work till his baby girl is released to come home. Kaylee loves Shopkins toys!
Dianna, we are happy to grant your wish! We have a plethora of Shopkins toys coming to lift Kaylee's spirits and $200 worth of gift cards for mom and dad to help with groceries and gas.