This before and after picture reduced us to tears yesterday. Two years ago we granted a wish for a young man named Dalton. He was a teenager in the prime of his life battling cancer. We promised Dalton that once he got through all of his chemotherapy treatments we would send him and his family on a Disney cruise (something he always wanted to do). The cruise gave Dalton something to look forward to during those nasty treatments.
Dalton & his family did go on that Disney cruise that summer and today, our wish recipient is WINNING! Look how handsome he looks!!
This is such an incredible before and after update. We posted it on this Mother’s Day to tell all you moms of Cancer Warriors that there is plenty of hope.
Dalton 1 - Cancer 0
Dear Bianca’s Kids,
Hi this is Elizabeth Perez you granted a wish for my son last November. We finally got Louie’s playset put together and he is having a blast with it. Just wanted to say thank you again and send some pictures.
Here is the nomination we received via messenger: ￼
I would like to nominate my son, Evan for a Lightz of Hope. Evan is a messenger of hope to those who know him and those who know of him via FB or word of mouth. Prior to the world shutting down he had a very full schedule of outside therapies, Intermediate Unit preschool and an ABA program. He has stopped all of that (37 hours of therapy) and is now safe at home. Evan was a two pound micropremie. He has many health conditions relating to that but the ones you notice would likely be his Cerebral Palsy and his Autism. He is having issues with the vast change in routine and regression from having only virtual therapies. He is highly motivated by lights and music. The first sign he learned was ON and a close second was MUSIC. He is still largely non-verbal but is having some success with his new communication device. I know this Lightz of Hope would be well loved by my son. Here is a smile from our Evan to brighten your day and here is a video that the local news did featuring Evan so you can see a bit more of all of the challenges and joy he brings to those blessed to meet him! He is the cutest spokesperson for social distancing.
What a perfect winner of a LightZ of Hope disco ball!
⭐️OUR NEXT LIGHTZ OF HOPE DISCO BALL WINNER IS SURE TO BE THE 1st NINJA WARRIOR WITH CEREBRAL PALSY⭐️
Here is the nomination we received:
Hi there. I would like to nominate my daughter Christin for the disco light. Christin just turned 7 on Saturday. She has CP and pulmonary issues. Christin is our feisty little super hero that no matter what she goes through she is always moving, dancing and pushing through the pain. Christin wants to be the first person with CP to fully compete on Amarican Ninja Warrior Jr.
Christin NEEDS this gift as it will be perfect for her to exercise to the music and lights as she preps for her Ninja Warrior competition
Here is the nomination we got:
Hello. I would like to nominate my daughter Lilly for the disco light. Lilly is 5 and been fighting two types of cancers since she was one. She loves to dance and this would be a great addition to her shows especially in the dark.
We know of Lilly and granted a wish for her a couple years ago while in the Midst of her cancer battle. We are SO HAPPY to see her thriving 2 years later. Have fun with your disco ball Lilly!
The Zachary Woodard Foundation and their Lightz of Hope program have blessed us with these disco ball light sets to bring joy & hope to Bianca’s Kids. While the foundation’s namesake passed away, Zachary’s memory & idea lives on by blessing others.
Zachary’s idea was to help brighten the day of children that are impacted by long term illness or disability by giving them LIGHTZ … a symbol of HOPE. We are giving away our LightZ of Hope sets to do just that.
Do you have a special needs child? You’ll want to listen to this episode of our Podcast Miracle Mob.
In today’s episode of the Miracle Mob podcast we talk to one of our most famous moms of a special needs child, Shannon Algerin - mother of Giovanni Hamilton.
Giovanni is one of our organization’s favorite Wish Recipient.’s. Giovanni has a rare disease called Schwartz Jampel syndrome. With only 300 or so recorded cases in the world, Giovanni’s particular genetic make up has only been documented once. He is the only person in the entire world with his form of Schwartz Jampel.
So what are the struggles of a mother with special needs child? And how can we as a society help them? Take a listen and please share this podcast with everyone you know. These parents are a very special and unique breed and the challenges they face or some of that none of us have ever even thought of. This conversation taught us a lot.
We received a wish from Christina Conlan, Senior Child Life Specialist at St. Christopher's Hospital for Children. Christina asked us for a piece of medical equipment-a digital EKO stethoscope. Kristina explained that this piece of equipment would allow her and other staff members at the hospital to tape & save on a flash drive a child’s heartbeat. This will allow parents whose children pass away at St. Chris to keep the sound of their child’s heartbeat with them forever. Christina also plans to give to those parents a print out of their children’s heartbeats as well, which this piece of equipment provides.
While the thought of this Wish is so incredibly heartbreaking, when we gave it more thought we realized how valuable the sound of a child’s heart beat is to their parents once they go to heaven. To be able to hear that sound for the rest of your life when you’ve lost your child has to be so valuable to grieving parents. Their children will be in Heaven but thanks to Christina and Bianca’s Kids, their hearts now will remain with their parents. It is for that reason that we granted this is Wish For Christina and St Chris Hosp. We bought the digital EKO along with several USB drives for Christina.
These two beautiful girls are sisters Claudia and Keira. According to their mom the girls “would love this light!” Claudia and Keira both have autism and anxiety. Sleep issues are a big thing in their house too. Mom is confident the LightZ will help ease their symptoms.
Mom tells us Keira loves to do concerts at night - she’s a big Madonna fan and is going to love add this musical disco lights to her concerts.
We are honored to partner with our friends at Lightz of Hope to make these wishes come true for kids like Claudia & Keira.
Thanks to partners at LightZ of Hope who donated these AMAZING disco lights sets to bring joy to children all over the U.S., we are giving a few away this week.
Our next winner is the handsome Rikson. He is turning 7 on May 15th and loves lights . Rikson is deaf , has CP, Fragile X and a spinal cord malformation. We are positive this will bring a smile to Rikson face and a little more fun on his birthday.
Be sure to follow the @lightzofhope page to support their great work and generosity. #miraclemob #biancaskids #cerebralpalsy