Myelle has been struggling with her health since birth. She battles daily fevers several times a day. These temperatures range from 101 - 103 degrees on the average day. When her fever goes up she will scream and cry for several hours until the fever goes down. Nothing I do can comfort her during these times of day. Every couple of weeks and months she hits a flare period where her fever goes to 105+ for 3-8 days. During this time her temperature never goes down. With her condition she battles constant abdominal pain, joint pain, headaches, gastrointestinal issues and more. Myelle has not yet been diagnosed but she has sent in genetic testing for Periodic Fever Syndrome. The doctors feel that this is the best diagnosis for her. She is in the process of getting orthotics to help with walking as she tends to trip and fall often. Despite her health she is such a bright little girl who is advanced for her age.
Myelle is turning 2 on December 6, 2016. Unfortunately due to the cost of her orthotics and Neocate products her family is unable to afford a birthday gift for her. Myelle spends a lot of time at Dr appointments each month and quite a bit of time travelling for her appointments. She also has recurrent hospitalizations. She would like to wish for a LeapFrog LeapPad™ Platinum Tablet to help pass the time.
We granted this wish for Myelle as keeping children occupied during medical treatments is vital.