BIRTHDAY WISH GRANTED FOR LITTLE BOY WITH GENETIC DISIRDER SO RARE HE IS ONE OF LESS THAN 60 IN THE WORLD. MEET JUDE
We have been following Jude’s page for a while. This adorable little guy just celebrated a birthday and we needed to gift him an awesome birthday present. His grandma advised that Jude’s mommy had been wishing for a Keentz 7s multi seat stroller. This special stroller would allow Jude to enjoy nature during long strolls. We were honored to grant that wish today.
~A little about Jude~
Jude Sullivan Peters has a very rare genetic disorder called Rhizomelic Chondrodysplasia Punctata (RCDP for short). He is one of less than 60 in the world. His chances for survival at birth were slim to none. His parents, Sully & Hannah Peters, have fought so hard for their baby boy, whom we affectionately call the “Brave Little Warrior.” He sees dozens of specialists, as well as occupational, physical, and speech therapists; he is defying odds every single day. Sully and Hannah travel to Delaware every few months for him to see his main medical team at Alfred I. duPont Hospital. His story is one of hope and faith in adversity. It has brought light and love to thousands of people all over the world! His facebook page is:
When a child dreads unavoidable surgeries, hospital stays and long car rides to/from the hospital, who do you call? BIANCA'S KIDS! Meet Teaghan.
Here's the wish we received via our website:
Dear Bianca's Kids,
Teaghan has a right ear cholesteatoma which we discovered during a tube placement in August of 2016, even though it is not classified as a tumor, it is just as destructive with a high re growth rate, Teaghan just completed her 4th surgery and the cholesteatoma was back, she has had to have her ossicles, ear drum, cochlea, tasting nerves removed, some bone removed, and have several skin grafts with ear canal widening surgery, she has also lost her hearing. The hospital she attends for these surgeries and follow ups is a 3 hour drive for us, she is extremely bored in the car and dreads the ride and hospital stays, she has been requesting a ipad however with 7 other children I just cannot afford one. Her dream would be met by having one and make her surgeries and car rides go by quicker.
Lindsay, I am happy to report that Teaghan's wish for an Ipad came true today. We are confident that it will serve as a great distraction and also a great learning tool. It's been ordered and will be to your door by April 11th. Enjoy!